The book is written in a clear and user-friendly style, and is ideal for undergraduate nursing students learning about dying, suffering, and caring for individuals and their families.
Author: Joyce V Zerwekh
Publisher: F.A. Davis
Nursing Care at the End of Life: Palliative Care for Patients and Families explores the deep issues of caring for the dying and suffering. The book is based on the Hospice Family Caregiving Model previously published by the author and focuses on the practice implications of care for the dying. The book is written in a clear and user-friendly style, and is ideal for undergraduate nursing students learning about dying, suffering, and caring for individuals and their families.
Using ethnographic research from two sites that offer emergency care and end-of-life care - a hospice and an emergency department - the author illustrates common themes around language use that serve as microcosms of the larger healthcare ...
Author: Carey Candrian
Publisher: Peter Lang Gmbh, Internationaler Verlag Der Wissenschaften
Category: Family & Relationships
While health care at the end of life is changing, the language for talking about treatment options and patient preferences around the end of life is taking longer to change. This book carefully details the way language shapes decisions around end-of-life care. Using ethnographic research from two sites that offer emergency care and end-of-life care - a hospice and an emergency department - the author illustrates common themes around language use that serve as microcosms of the larger healthcare system in the United States. The sites have different purposes for providing care, yet the themes from both serve as guidance and reflection for other areas of caregiving. <BR> The language used to talk about death holds consequences and opportunities for understanding and making decisions about care practices. This book uses personal stories and perspectives from patients, family members, and medical workers to paint a picture of some of the issues and tensions individuals and caregivers face. With an aging population - one that represents a major public health challenge in the twenty-first century - Carey Candrian argues that examining the care we provide for individuals, especially aging individuals, is fundamental to creating a developed, ethical, and engaged society.
Chaplains in healthcare settings offer patients spiritual care that involves companionship, counselling and maintaining hope. This is particularly important at the point where a patient has run out of treatment possibilities.
Author: Steve Nolan
Publisher: Jessica Kingsley Publishers
Category: Body, Mind & Spirit
Chaplains in healthcare settings offer patients spiritual care that involves companionship, counselling and maintaining hope. This is particularly important at the point where a patient has run out of treatment possibilities. This book reflects creatively on the work that chaplains do with people who are dying and the unique quality of the relationship that palliative care professionals construct with patients at the end of life. Based on qualitative research with practising palliative care chaplains, Spiritual Care at the End of Life explores the nature of hope in its different forms at different stages of terminal illness, and asks how chaplains can help dying people to be hopeful even when facing the inevitability of their death. The book identifies key moments in this relationship, from the person's initial reaction to the chaplain, to the chaplain becoming an accompanying presence and creating the potential to provide comfort, strength and "hope in the present". This thoughtful and inquisitive book investigates the underlying theory that spiritual care is rooted in relationship. It has implications for practice in the work of chaplains, counsellors and all healthcare professionals supporting people who are dying.
Author: Institute of MedicinePublish On: 1997-10-16
This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family.
Author: Institute of Medicine
Publisher: National Academies Press
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
When we launched the End of Life Care Strategy1 in July 2008, the challenge of
promoting high quality care for everyone at the end of life was considerable. Over
half the population of England and Wales were dying in hospital despite the ...
Author: Claire Henry
Publisher: Jessica Kingsley Publishers
Category: Social Science
As someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.
This book sets out an understanding of this complex domain, describing how spirituality is experienced and expressed, and looks at the impact of terminal illness.
Author: Cobb, Mark
Publisher: McGraw-Hill Education (UK)
Holistic models of cancer and palliative care frequently refer to spirituality as an important element. But what do we mean when we talk about spirituality and how do we provide spiritual care? This book sets out an understanding of this complex domain, describing how spirituality is experienced and expressed, and looks at the impact of terminal illness. The author argues that if we are to recognize spirituality as a significant aspect of living and dying then care providers must develop an interesting, consistent and effective approach. Therefore issues of training, policy and practice all need to be addressed. Spirituality is often represented as the fourth pillar of palliative care, and yet it is often the least developed area in terms of both theory and practice. Originating from the author's clinical and teaching experience, this book aims to explore the concepts, issues and practical implications of spirituality in care.
78. 79. Field MJ, Cassel CK, eds., for the Committee on Care at the End of Life,
Institute of Medicine. Approaching death: improving care at the end of life.
Washington, D.C.: National Academy Press; 1997. McPhee SJ, Rabow MW,
Author: Henry S. Perkins
Psychological, social, and spiritual care is as important as physical care at the end of life. Yet caregivers often feel ill-equipped to give that nonphysical care. This book shows how to do it. The book addresses all caregivers who attend dying patients: doctors, nurses, chaplains, clergy in the pastorate, social workers, clinical psychologists, family caregivers, and others. It covers such topics as the functional and emotional trajectories of dying; the varied approaches of patients and caregivers to end-of-life decisions; culturally based beliefs about dying; the differences between depression and grief; and people’s views about the right time to die, the death experience itself, and the afterlife. For each topic the book introduces core concepts and summarizes recent research about them. The book presents much of its material in readable tables for easy reference; applies the material to real-life cases; lists the main “take home” points for each chapter; and gives references for additional reading. The book helps caregivers anticipate the reactions of patients and survivors to end-of-life traumas and suggests how caregivers can respond insightfully and compassionately. At the same time the book challenges caregivers to think through their own views about death and dying. This book, therefore, is a must-read for all caregivers―professional and nonprofessional alike―who strive to give their patients comprehensive, high-quality end-of-life care.
The book explains the distinction between ordinary and extraordinary means, the difference between killing and allowing to die, criteria of patient competence, what to do in the case of incompetent patients, the meaning and use of advance ...
Author: David F. Kelly
Publisher: Georgetown University Press
For over thirty years, David F. Kelly has worked with medical practitioners, students, families, and the sick and dying to confront the difficult and often painful issues that concern medical treatment at the end of life. In this short and practical book, Kelly shares his vast experience, providing a rich resource for thinking about life's most painful decisions. Kelly outlines eight major issues regarding end-of-life care as seen through the lens of the Catholic medical ethics tradition. He looks at the distinction between ordinary and extraordinary means; the difference between killing and allowing to die; criteria of patient competence; what to do in the case of incompetent patients; the meaning and use of advance directives; the morality of hydration and nutrition; physician-assisted suicide and euthanasia; and medical futility. Kelly's analysis is sprinkled with significant legal decisions and, throughout, elaborations on how the Catholic medical ethics tradition—as well as teachings of bishops and popes—understands each issue. He provides a helpful glossary to supplement his introduction to the terminology used by philosophical health care ethics. Included in Kelly's discussion is his lucid description of why the Catholic tradition supports the discontinuation of medical care in the Terry Schiavo case. He also explores John Paul II's controversial papal allocution concerning hydration and nutrition for unconscious patients, arguing that the Catholic tradition does not require feeding the permanently unconscious. Medical Care at the End of Life addresses the major issues that inform this last stage of caregiving. It offers a critical guide to understanding the medical ethics and relevant legal cases needed for clear thinking when individuals are faced with those crucial decisions.
It has collected the opinions of many cutting-edge researchers. Those who design and conduct economic evaluations or economics-related research in end of life populations will find this book thought provoking, instructive and informative.
Author: Jeff Round
Category: Business & Economics
This work carefully guides the reader through the methodological, policy and ethical challenges facing health economists conducting research in palliative care. It has collected the opinions of many cutting-edge researchers. Those who design and conduct economic evaluations or economics-related research in end of life populations will find this book thought provoking, instructive and informative. The provision of care to individuals with disorders associated with advancing age, such as cancer and dementia, is an increasing concern amongst policy makers and providers of health and social care. Accordingly, the burden on state and private funders in providing care to patients with these complex illnesses is of growing importance to health economists. However, answering the questions raised by the research community on end of life and palliative care health economics has received little attention. The authors shed light on many questions including: Are economic evaluation methods fit for purpose in patients at the end of life? What is the best way to measure and value health outcomes in this population? What are the appropriate societal rules to govern resource allocation for people at the end of life? Are these people more or less deserving of resources than other patients? Does age matter? How can we define a good death for the purposes of resource allocation decision making? What ethics govern research in end of life patients?
"This Guidance Document was informed by a variety of evidence sources and consultations, but the main impetus was from the National EoL Framework Forum held in Canberra in October 2009, which brought together a broad based group with ...
Author: Palliative Care Australia
Category: Medical care
"This Guidance Document was informed by a variety of evidence sources and consultations, but the main impetus was from the National EoL Framework Forum held in Canberra in October 2009, which brought together a broad based group with experience and expertise in palliative and end of life care across a range of care settings ..."--Executive summary.
A good death,as defined by the Institute of Medicine's Committee on Care at the End of Life, is “one that is free from avoidable distress and suffering for patients,
families and caregivers; in general accord with patients' and families' wishes; and
Author: Kim K. Kuebler
Publisher: Elsevier Health Sciences
Provides the guidelines and tools you need to provide patients and families with comprehensive, evidence-based interventions.
This volume explores how the scarce resources of intensive care units should be distributed. Three hypothetical patients, each with a different chance of survival, desire intensive care.
Author: David W. Crippen
Publisher: Springer Science & Business Media
This volume explores the debate over medically futile treatment in the ICU, where the urgency to resolve it amounts yearly. Dr. Kelly presents an introduction to the arguments over medically futile treatment in the United States. Then, three fictitious patients arrive in turn at the ICU, each critically ill but with a different degree of promise. A panel of experienced critical care physicians from around the world offer their assessments and propose management based on resources they routinely have before describing what they would do with unlimited resources.
Among the contributors are leading experts in death studies, from sociology,
anthropology, social psychology, ethics, nursing, medicine and pastoral care. A
particular feature of the series is its attention to the developing field of palliative care, ...
Author: Woods, Simon
Publisher: McGraw-Hill Education (UK)
Category: Social Science
"I enjoyed reading this book very much. It is very readable and well argued using real life cases and thought experiments as well ... The book provides the reader with a short history of and an overview of the most important issues in modern palliative care. Various theoretical discussions are clearly set out, such as: the relationship between the hospice movement and modern palliative care, between palliative care and health care in general, between palliative sedation and euthanasia, and the question whether euthanasia can be part of palliative care. The author starts with exploring the existing debates and then develops his own arguments in a balanced and well-structured way." Medicine, Health Care and Philosophy "The text of this book is accessible, the philosophical and ethical arguments are clearly articulated, and relevant ethical principles are integrated into the critique of the issues, making this a very useful book for nurses working in palliative as well as in general care." Nursing Ethics "It is crucially important for any student or researcher who is seriously consideringethical and policy matters at the end of life to embrace and tackle intellectually the issues that Woods raises in this book. I would happily recommend it." Journal of Medical Ethics What constitutes a good death? Is it possible to arrange a good death? Is killing compatible with caring? This book looks at death and the issues and ethical dilemmas faced at the end of life. It addresses the central issues in the field such as: Withholding and withdrawing treatment Euthanasia and assisted suicide Terminal sedation The role of autonomy Palliative care Drawing on a philosophical framework, the author explores end-of-life issues in order to reflect on the nature of the good death and how this may be achieved. The book considers whether it is permissible or desirable to influence the quality of dying: offering palliative sedation as a possible alternative to terminal sedation, the argument is extended to examine why some forms of assisted dying can be shown to be compatible with the ideas of palliative care. Consideration is also given to future developments such as life extension techniques and the ethical questions that that these techniques might raise. As such, the book follows in the ongoing philosophical tradition to critique and analyse current thought on the topic of death, encouraging self-reflection in the reader and offering suggestions for practice in end-of-life care. Death's Dominion is key reading for students and professionals involved in care of the dying, as well as those with an interest in the philosophical issues surrounding end-of-life care.
The aim of this book is to improve understanding of end - of - life issues and
promote effective communication , in order to improve the care of dying patients .
Although the patient with advanced cancer is the example that will be considered
Author: David Jeffrey
Publisher: Radcliffe Publishing
In this volume ethical analysis is linked with practical advice on how to broach difficult decisions, handling uncertainty and facilitating patient choice. It links the ethical debate to the clinical problems of communication.
This user-friendly guide offers you practical, direct answers for the difficult and little-taught questions that arise when providing care for the dying.
Author: Barry Kinzbrunner
Publisher: McGraw Hill Professional
This user-friendly guide offers you practical, direct answers for the difficult and little-taught questions that arise when providing care for the dying. Features: * Perspectives of patients, families, and other health care professionals, as well as physicians * Solution-oriented coverage on preparing patients, managing symptoms, and handling legal/ethical issues near the end of life * Guidance on timing: when is end-of-life care needed? * Breaking bad news: how to inform the patient * Useful, current, guidelines on the treatment of pain, dyspnea, skin and mucus membrane problems, gastrointestinal conditions, and other common symptoms near the end of life * In-depth discussion of end-of-life controversies, including advance directives and resuscitation, nutritional support and parenteral hydration, and physician-assisted suicide * How to assess quality of life near its end * Practical help with end-of-life care for special groups, such as HIV and pediatric patients * Guidance on bereavement, depression, and other psychosocial and spiritual issues at the end of life * Suggestions on benefiting from interdisciplinary teamwork * What every clinician needs to know about the last days of the actively dying
I feared he would die with more distress and sooner with further chemotherapy
than with comfort care. But, of course, I only predicted he would die. There was a
remote chance he might not. That was the chance Mr. Doyle wanted. Death in the
Author: Lee Gutkind
Publisher: Underland Press
Category: Family & Relationships
What should medicine do when it can’t save your life? The modern healthcare system has become proficient at staving off death with aggressive interventions. And yet, eventually everyone dies—and although most Americans say they would prefer to die peacefully at home, more than half of all deaths take place in hospitals or health care facilities. At the End of Life—the latest collaborative book project between the Creative Nonfiction Foundation and the Jewish Healthcare Foundation—tackles this conundrum head on. Featuring twenty-two compelling personal-medical narratives, the collection explores death, dying and palliative care, and highlights current features, flaws and advances in the healthcare system. Here, a poet and former hospice worker reflects on death’s mysteries; a son wanders the halls of his mother’s nursing home, lost in the small absurdities of the place; a grief counselor struggles with losing his own grandfather; a medical intern traces the origins and meaning of time; a mother anguishes over her decision to turn off her daughter’s life support and allow her organs to be harvested; and a nurse remembers many of her former patients. These original, compelling personal narratives reveal the inner workings of hospitals, homes and hospices where patients, their doctors and their loved ones all battle to hang on—and to let go.